Thursday, March 19, 2015

So Proud

Henry will soon be two. And he cannot walk. He cannot crawl. He cannot eat. He cannot talk. He will be spending his second birthday in appointments with doctors and therapists. 

I will forever remember the night my parents told my sisters and I about Henry's diagnosis of Down Syndrome. One of the first things we did was pull out "What to Expect the First Year" and make all these little charts of what he should be doing when so we would be able to compare his progress with that of his peers. For the first six months we would faithfully measure milestones on our little charts. We jumped for joy when every month he was right on target. Then progress stopped. Eighteen months later, despite countless hours of therapy, here we are with no significant progress. We no longer look at those charts. 

Several months ago I had this dream. We were at Keys' stadium and there was Henry, walking along that narrow walkway behind the seats, wearing his little grey stripe overalls. On his face was the most beautiful, triumphant smile. He was walking. My dream continues to remain a dream. A fantasy of my imagination.

We were visiting a church on vacation. I was holding Henry. A lady approached me, commented on how sweet Henry was and asked his age. When I replied he was almost two her face fell. "Oh." There was so much behind that small word. 

Henry is almost two and people are starting to notice he is not like every other two year old. 

Tonight as I tucked Henry in bed I whispered, "I'm proud of you." 

Henry will soon be two. And he has fought for everything he has accomplished. He has touched hundred of lives as evidenced by the stackes of letters and emails we have accumulated in his two years. Despite his limitations he is changing the world. 

I am so proud.


  1. I LOVE this post! I am so proud of him for all that he has accomplished and overcome. He has already lived and loved beyond his years. One day when he walks his wife back down the aisle, after saying his vows, and eats more wedding cake then he should, we will all look back and smile! Our children don't have to follow anyone else's milestones, they were born to live this life their way (and their plans are far greater)!

  2. I love this post, Brianna! Henry is an amazing boy and we love him!